Family Reflections: Navigating VEOIBD – A Mother’s Perspective on Pediatric Crohn’s Disease and Research Advocacy
On February 22, 2013, Lowell underwent a double-balloon enteroscopy. Post-procedure, he experienced severe pain at home, leading to a hospital visit where it was discovered that his bowel had perforated, requiring immediate surgery. The following days were challenging, with complications arising, necessitating a second surgery due to an infection. Lowell spent weeks in the hospital and continued to require medical care in the following years, although the frequency decreased over time.
Stacy Dylan, a mother navigating her son’s journey with Crohn’s disease, shares her harrowing experience dealing with the complexities of VEOIBD. The emotional and physical toll of witnessing a child endure such medical challenges is profound, as Stacy recounts the trauma and difficulties faced during Lowell’s treatment.
Despite the hardships, Stacy remains a strong advocate for research and awareness in the field of pediatric Crohn’s disease. Her story sheds light on the importance of support, education, and ongoing medical advancements to improve the lives of those affected by VEOIBD.
Stacy’s narrative serves as a poignant reminder of the resilience and determination required to navigate the complexities of chronic illness in children. Through her advocacy and personal journey, she highlights the need for continued research and support systems to enhance the quality of life for young patients battling VEOIBD.
