Childhood dementia research has received a significant funding boost from the South Australian government and the Little Heroes Foundation, with an investment of $500,000 in research at Flinders University. This funding injection, described as a ‘one-off’ boost, has been warmly welcomed by Adelaide mother Renee Staska, whose three children are living with Niemann-Pick Type C, a form of childhood dementia.
The state government’s commitment to this cause has raised hopes for further research funding to combat the disease. Staska’s seven-year-old daughter, Holly, who aspires to lead the Port Adelaide women’s football team, is one of the children affected by this terminal illness. Despite their condition, Staska emphasizes that her children have dreams and aspirations that deserve to be pursued.
Niemann-Pick Type C is a rare genetic condition leading to childhood dementia, characterized by the accumulation of cholesterol and fatty acids in the body’s cells. This buildup results in a progressive decline in cognitive function, loss of motor skills, seizures, and ultimately dementia. Tragically, most children with this illness do not survive beyond the age of 18.
Staska reveals that her children are already exhibiting symptoms of the disease, struggling to keep pace with their peers in school activities and facing challenges in basic tasks like reading and writing. Despite their difficulties, the family remains resilient, making the most of each day.
The recent funding injection follows calls for increased support in the fight against childhood dementia. The ‘State of Childhood Dementia 2022’ report highlights the devastating impact of the disease, with approximately 90 children in Australia succumbing to childhood dementia annually.
