Filmmaker Irene Taylor Explores Celine Dion’s Battle with Rare Disorder in New Documentary
Portland-based filmmaker Irene Taylor has taken on a new project that delves into the life of Canadian pop sensation Celine Dion. The documentary, titled I Am: Celine Dion, explores the singer’s battle with a rare neurological disorder known as Stiff Person Syndrome (SPS).
Despite her usual focus on stories of sexual abuse scandals and environmental issues, Taylor found herself drawn to Dion’s story. Admitting to knowing little about the singer before starting the project, Taylor brings a fresh perspective to the pop music icon’s life.
Pop documentaries have gained popularity in the streaming era, but Taylor’s approach to Dion’s story aims to avoid the typical hero worship often seen in such films. Initially hesitant to work on a celebrity-focused project, Taylor’s perception of Dion evolved as she got to know the singer personally.
When initially approached about the documentary, Taylor was apprehensive about potentially facing the artificiality often associated with celebrity culture. However, as her friendship and collaboration with Dion grew, Taylor’s reservations faded, leading her to take on the challenge of capturing the singer’s life on film.
One of the key aspects of the documentary is Dion’s struggle with SPS, a condition that can lead to life-threatening spasms triggered by moments of elation. The film provides a glimpse into Dion’s Las Vegas home life, including a harrowing incident where she faced a severe attack that nearly cost her life.
Taylor’s unique perspective as a filmmaker with a background in telling diverse stories adds depth to the narrative, offering viewers a more intimate look at a global music icon grappling with a debilitating illness.